7-year-old Weighs Just 7 Kilos Because Of Rare And Deadly Disease That Threatens To Kill Him Without A Transplant

“For Harsh, no infection is a mild infection. All of them are a threat to his life. In 2018, my son has been admitted to the hospital 5 times. In the past 7 years, he’s been admitted over 40 times and fought so hard to live. Just 15 days ago, for the first time, he told me, ‘Will I get better? If not, it’s okay, let me die’. I was devastated and I wanted to cry but I didn’t shed a tear. If I cry in front of him, he will lose his will to fight.” -  Pushpalata, Harsh’s motherSince birth, 7-year-old Harsh has been tortured by a rare immune disease, making him extra susceptible to every infection out there. Harsh weighs just 7 kilos and he has valiantly recovered from countless life-threatening infections. The malnourished 7-year-old is now at an extremely critical stage and cannot survive without an immediate bone marrow transplant.Harsh has been battling life-threatening infections since he was a small baby; it has only got worse over the years“In 2011, when he was a
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An Accidental Fire While Playing In The Balcony Has Left 50% Of This 6-Year-Old’s Face And Body Burnt

“Just a few minutes after he went to the balcony, I heard a sound as loud as blast. When I rushed to the balcony, I saw his little body on fire. I panicked and rushed to put out the fire, he was already unconscious by then. I wish I had not asked him to go outside and play that day, I wish he had stayed inside, safe and sound.”His mother carried him to the hospital alone as no one came forward to help Acamas is the only child of Shanti and Lazarus. Like any other day, while the family was engrossed in their daily routine, suddenly their world fell apart when Acamas caught on fire. The meter box on the above floor had burst and the fire came down on the ground floor where the 6-year-old was playing. The fireball crashed the entire wall and then hit the little boy.“My husband, Lazarus was at work as usual. When I saw my son burning, I somehow managed to take him out to the open place outside our home. There were so many people, but no one came forward to help me put out the fire
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Adhar – A Unique Home For Special Children in Mumbai, Needs A Little Help

All parents worry about their children's future. But this worry is compounded for parents of special children. The child may have grown up, but his mental age remains low – depending on the type of mental retardation. Ageing parents are beset by the one thought – “After us, what? Who will take care of my child?”It is a constant, niggling fear – because no one else will give their vulnerable, very dear child, the loving care that she grew up with.People who make up Adhar are themselves parents of special childrenDriven by this fear, 25 parents of children with special needs came together to start a home where their children would be taken care of after them. To this day, this very special home Adhar, derives its inspiration from the vision of these founders and cares for 320 special adults. Adhar has two residential complexes, one in Badlapur, Mumbai and one in Nashik.Adhar residents on an outingAt Adhar, the adults get lifelong care, training, rehabilitation with the help o
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This Pastor Doesn’t Know How He Will Go On Living If He Cannot Save His 12-Year-Old Daughter

“She keeps telling me, ‘Nana, I will go be with grandma in heaven. Let me go.’ I have seen so many people succumb to Thalassemia. I prayed for their souls not knowing they had a chance. I found out my Esther has a chance to survive this, but I never thought affordability will stand in the way.”Esther has been suffering from a rare blood disease that leaves her weak and at the brink of death if she does not get frequent blood transfusions. Her father, a pastor, and mother, a worker at the church, spent lakhs to keep her alive all these years. Now, Esther’s father is struggling to even take her to the hospital, leave alone get her the life-saving treatment she needs.A dreadful illness has destroyed this pastor’s familyDespite poverty, David and Sunita led a happy life and rejoiced when they were blessed with a child. David was happy to become a father but the joy did not last long as fate had other plans. Esther was diagnosed with Thalassemia when she was just 6 months old.
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Medicines Aren’t Enough To Keep This 7-Year-Old Alive Who Is Quickly Losing Blood And Time Without Surgery

“When they poke him with needles several times to find a vein to draw blood, he winces in pain, holding back his tears. He looks at me and I hold his hand, telling him that it’ll be over soon. My son has gone from being terrified of needles to thinking that this is ‘normal’. At the age of 7, he has spent more time in a hospital ward than a classroom." - Surendra, Father.Every day, Surendra stands in front of the calendar plastered on his wall, counting the number of days left for his 7-year-old’s surgery. And every day, he sighs with disappointment. Mahir has two weeks to get a bone marrow transplant and finally be free from the pain of Thalassemia, but Surendra and Seema have nothing left to save him. Mahir is getting weaker by the day. His energy is depleting and the life from his eyes is slowly fading away.Mahir started vomiting blood and bleeding uncontrollably from his nose because of transfusionsMahir was only an 8-month-old baby when his scared and nervous parents c
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Pastor Says He Will Consume Poison With His Family If They Cannot Save Their 12-year-old Daughter

“She keeps telling me, ‘Nana, I will go be with grandma in heaven. Let me go.’ I have seen so many people succumb to Thalassemia. I prayed for their souls not knowing they had a chance. I found out my Esther has a chance to survive this, but I never thought affordability will stand in the way.”Esther has been suffering from a rare blood disease that leaves her weak and at the brink of death if she does not get frequent blood transfusions. Her father, a pastor, and mother, a worker at the church, spent lakhs to keep her alive all these years. Now, Esther’s father is struggling to even take her to the hospital, leave alone get her the life-saving treatment she needs.A dreadful illness has destroyed this pastor’s familyDespite poverty, David and Sunita led a happy life and rejoiced when they were blessed with a child. David was happy to become a father but the joy did not last long as fate had other plans. Esther was diagnosed with Thalassemia when she was just 6 months old.
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While 7-month-old Suffocates Due To Swollen Tummy From Liver Disease, Parents Scramble For Money To Save Her

Baby Vishnu Priya has almost lost her voice from crying, but she doesn’t stop because that is all she can do. Her fluid-filled tummy has become so enormous that it makes her breathless every now and then. Her mother, Vijayalakshmi, cannot bear to see her baby writhe in pain and tries to hold her; but the moment she does that, Vishnu Priya’s cries become worse. Nothing can help this baby except a liver transplant – her poor parents know that well. The only thing they don’t know is how they will arrange the funds for it.Vishnu Priya’s parents suspected that she was not very healthy,  but local doctors in their village told them it was nothing to worry aboutVishnu Priya was born in a small hospital in Kondapur, a village in the Sangareddy district of Telangana. She had jaundice at birth itself, but doctors there dismissed it as a normal condition.  “They said that some babies would get this yellowness in their eyes and skin, and that it would go away with time. We told them
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